Barbara A. B.: After being diagnosed I went threw all the stages of death (mourning). That was a horrible feeling. My new life is the pits, I can't enjoy my children. I couldn't provide for them. I had to let my mother adopt them so they could have a good life. (That almost killed me in itself…) Over time friends start canceling you out of there lives. … I want Quality of Life back.

People look at me and say "you look fine," but hey everybody look inside of me I am dying from the pain, every part of my body but my bones hurt. … There are many people in this world that are committing suicide because they can't deal with the pain or there life-how it changes so radical.

…we lose our concentration, it is so difficult to deal with, to carry on a conversation and in a split second forget what you were saying.

Micki: I have two children ages now ten and eight. They have watched their mom fall apart. When they needed me the most I couldn't cope. I was first diagnosed with irritable bowl syndrome; next it was carpal tunnel syndrome, migraines, extreme pain in my shoulders, hands and neck. Basically I was diagnosed with all of the red flag symptoms for FMS. …even with sleep meds I don't sleep well and when I awake I feel like I had been playing on the freeway with trucks. …I am in such pain somedays that I can only go from my bed to the couch. ... Most people ignore the fact that I have CFS and FMS and look at me like a winy, self-indulgent person. …If they don't feel the pain, depression, stress and sleeplessness for some reason they become cold and uncaring.

Debra: My memory had to be something I excelled in due to the job that I had before this now I'm lucky if I can recall what I had for lunch yesterday.

The constant pain that never goes away it affects your mood… Try to remember life before pain and I can't…

Roseanne: I've been a fighter all my life, now I have no strength to fight.

Michele S.:

Fibro what? I have an illness you can not see. 

You think I'm just crazy or fat and lazy. 

You can't see the muscles that scream out at night.

Nor the lack of sleep that makes my brain feel french-fried.

Sometimes I forget when to dress, sleep or clean,

I'm confused and I'm lost and sometimes I'm mean, 


But I can't run to the store, or pick up a child, 

I can no longer stand crowds or go shopping wild. 

It hurts to get dressed and forget a hairdo.

I feel like I'm alone and there's nothing I can do.


They turned and they said it's all in your head.

But I'm crying because I know that others are dead.

They thought they were alone and had no where to turn,

how long will it take all the others to learn?


Our bodies are complexed its connected in ways, 

no one can understand but stand and looked dazed 

...so until you DON'T live in my body of pain,

remember I'm human, I'm scared, but I'm sane!!