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Advocacy Project 2001: Changing Scenes on line!

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New York
Support Network, Inc.:

NYSN's homepage
http://nysn.org

May 12^th Advocacy Email Campaign:

The email we'd like you to forward -- to as many people as possible!

May 12^th Letter Writing Campaign:

Introduction Page
http://chargeinc.org/letterwriting.html

Sample Letter
http://chargeinc.org/formletter.html

Deadline extended--click here for details!

Last year CHARGE and NYSN* produced Advocacy Project 2001: Changing Scenes (http://chargeinc.org/ap2001/cover.html), a booklet that reflected the life-changing effects of fibromyalgia syndrome, chronic fatigue immune dysfunction syndrome and related disorders, to communicate the complexity of these illnesses and the way our lives have been changed to the public. (To receive a copy please send four 37-cent stamps and your address to CHARGE, PO Box 1085, Pearl River, NY 10965. Please do not affix the stamps to an envelope.)

Advocacy Project 2002: Forget Me Knots (AP 2002):
This year CHARGE and NYSN are creating a quipu to represent the years we have each lost to these conditions. A quipu is the way the people of the Andes kept records using knots tied in cotton cord. Generally there was a main cord off which other cords hung, each cord containing a series of knots representing numbers. We will have a main ribbon which we will hang your ribbons off. We ask that you send us a ribbon tied with knots, one knot for each year you have been ill with these conditions. We hope this visual aid will help others see how many lives have been affected, and how many years we have endured.

We've gotten so many emails from interested individuals and support groups who aren't able to participate by April 15^th that we have extended the deadline for AP 2002 entries! Here are the details:

If your ribbon(s) come after April 2002, we'll still add them to the quipu as soon as possible, and we'll include them in the pamphlet when we update it at a later date. (Within the year.)

Please use the button on the left in the purple box to email this web page's address to all who you think would like to join in this project!

* Cure Hope Advocacy Research and Global Education, Inc. and New York Support Network, Inc.

Advocacy Project 2002: Forget Me Knots (AP 2002) for people with fibromyalgia syndrome, chronic fatigue immune dysfunction syndrome or multiple chemical sensitivity. We ask that you send us a ribbon tied with knots, one knot for each year you have been ill with these conditions. We will add them to our quipu and display it in hopes that it will help others understand how many years these illnesses have already taken.